About Us

Susan G. Komen, the world’s leading breast cancer organization, is laser-focused on saving lives and creating a world without breast cancer. To make that vision a reality, we employ a unique, 360-degree approach to discovering breakthroughs for the most aggressive and deadly breast cancers, while ensuring everyone gets the care they need – no matter who they are or where they live.

By investing in Komen, you are helping to accelerate research while also ensuring your neighbors facing breast cancer today get the help, support, and treatments they need to live longer.

As the Upstate New York Affiliate of Susan G. Komen, we support the Komen Mission: To save lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.

As part of a nationwide organization, we share one common Komen Vision: a world without breast cancer.

Our service area includes the following counties:

  • New York: Albany, Allegany, Broome, Cattaraugus, Cayuga, Chautauqua, Chemung, Chenango, Clinton, Columbia, Cortland, Erie, Essex, Franklin, Fulton, Genesee, Green, Hamilton, Herkimer, Jefferson, Lewis, Livingston, Madison, Monroe, Montgomery, Niagara, Oneida, Onondaga, Ontario, Orleans, Oswego, Rensselaer, Saratoga, Schenectady, Schoharie, Schuyler, Seneca, St. Lawrence, Steuben, Tioga, Tompkins, Warren, Washington, Wayne, Wyoming, Yates
  • Pennsylvania: Bradford, Potter, Tioga

For information on breast health, visit the About Breast Cancer (ABC) section of komen.org.

For breast cancer resources in your your community, please visit our Local Breast Cancer Resources for You section.

Where Your Money Goes

When you invest your dollars with or fundraise for Susan G. Komen Upstate New York, you are helping to fight breast cancer on all fronts. With a nationwide footprint, Susan G. Komen is uniquely structured to focus on four pillars to advance our mission — Research, Care, Community, and Action.

Research is the only thing that will ultimately cure breast cancer. To ensure our investments have the greatest benefits to patients, Komen is focused on research that will lead to new, more effective treatments, especially for the most aggressive and deadly breast cancers.

To learn more about Komen’s research priorities, and current research underway, click here.

Addressing gaps in care ensures that our neighbors have access to resources they need, no matter where they live. Through our Treatment Assistance Program, the Komen Breast Care Helpline, the Komen Clinical Trial Information Helpline, and online resources found in the About Breast Cancer (ABC) section of komen.org, we are able to connect people to need so that we can save more lives.

Building on our legacy of community impact, we are committed to getting closer to patients to support their needs in relevant ways. Through the Komen African American Health Equity Initiative and the Komen Metastatic Breast Cancer Impact Series, we are able to address the unique system drivers that affect different communities.

Whether it is taking action through public policy advocacy to increase research funding or to break down legal and regulatory barriers to care, Komen ensures the voice of the breast cancer community is heard by policy makers at all levels of government.

To learn more about Komen’s advocacy priorities, and to become a Komen Advocate, click here.
To learn more about advocacy initiatives in New York State and Pennsylvania, click here.


History & Transformation in Mission Delivery

Susan G. Komen continues to be the organization of choice for those looking to make a significant impact in the fight against breast cancer. Komen’s unmatched national infrastructure and global, grassroots footprint enables us to provide innovative and impactful solutions quickly at scale.

Susan G. Komen was founded by Nancy G. Brinker, who promised her sister, Susan G. Komen, that she would end the disease that claimed Suzy’s life. Susan fought breast cancer with her heart, body and soul. Throughout her diagnosis, treatments, and endless days in the hospital, she spent her time thinking of ways to make life better for other women battling breast cancer instead of worrying about her own situation.

Moved by Susan’s compassion for others and commitment to making a difference, Nancy G. Brinker promised her sister that she would do everything in her power to end breast cancer.

Since its founding in 1982, Komen has funded more than $1 billion in research and provided more than $2 billion in funding to screening, education, treatment and psychosocial support programs serving millions of people in more than 30 countries worldwide.

Working Together to Create Greater Impact

For many years, Komen Affiliates established local offices throughout the US. In 2016 four regionally-based New York State Affiliates (Central New York in Syracuse, Northeastern New York in Albany, the Twin Tiers in Elmira, and Western New York in Buffalo) began collaborating to make a greater impact and operate as efficiently as possible. In early 2017, the Boards and staffs of all four regional offices formalized a legal partnership and became the Upstate New York Affiliate of Susan G. Komen®.

In 2020, the global COVID-19 pandemic showed that Komen’s role in ensuring that our neighbors affected by breast cancer get the care they need would become more important than ever. To support both long-term sustainability, and to most effectively and efficiently meet the needs of the breast cancer community we serve, Susan G. Komen headquarters announced a series of changes to unify mission delivery and centralize operational structure.

With these changes, a new era of mission delivery will take place. This includes strengthening advocacy and investment in research, as well as focusing on connecting to breast cancer patients in more direct and personal ways.

As a result, throughout 2020 and 2021, Komen headquarters will transition its 61 Affiliates into one united entity. While this transition means there will no longer be an independent Upstate New York Susan G. Komen Affiliate, it does not mean that Komen is leaving Upstate New York.

During this time of transition and consolidation at a national level, Susan G. Komen, and the leadership of our Upstate New York Affiliate, is committed to fulfilling awarded grant commitments and established partnerships across our service area.

While community grantmaking will cease after the national consolidation, Susan G. Komen will continue to provide excellent local engagement opportunities and support – both for those who need our help, and for those who want to help.

With dollars raised, we will continue to fund life-changing research. We will continue to advocate for compassionate public policy and patient rights.  We will continue to empower people with fact-based information.  And, we will continue to make a difference in the lives of our neighbors across our communities.

Komen Upstate New York 

Email: info@komen.org

Komen’s National Breast Care Helpline
To speak to someone about breast health, breast cancer concerns and help find local resources, please call 1-877 GO KOMEN (1-877-465-6636).

Mailing address for Komen: 
Attn: NY 300
Susan G. Komen
13770 Noel Rd, Ste 801889
Dallas, TX 75380

Komen Upstate New York Board of Directors

Our volunteer board of directors advise, assist and aid efforts to support breast cancer education and outreach programs across our service areas. The group is comprised of representatives from all four regions of the Upstate Affiliate.

Sarah Bruno-Robichaud

Diane Butrym

Arsyl DeJesus, MD

Adam Desmond

Susan Duffy, Esq.

Stephen Edge, MD

Gina Fedele

Linda Gray

Peggy Jacobsen

Marcia Kimball – Secretary

Colleen Nossavage

Mila Meier

Scott M. Philbin, Esq. – President

Justin Reid, CPA – Treasurer

Debra Sottolano, Ph.D.

Maria Winston


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